As we live through these unprecedented times of social distancing and the uncertainty COVID-19 brings to the community, we want to remind you that you’re not alone.
If you are affected by an asbestos-related disease and would like support and connections, we’re there for you.
MESO MONDAY – join our support network as we meet online each Monday for a coffee and chat.
FACEBOOK PRIVATE GROUP – for mesothelioma sufferers and their families, this is a forum for open discussion and a safe place to encourage and share with one another.
Contact our Support Network Facilitator, Paige on 0481 553 575 for more information.
SUPPORT LINE – chat with someone who understands what you’re going through and can offer practical advice and a listening ear.
Do not hesitate to get in touch if we can help in any way.
Asbestosis…the thought of not getting enough breath was possibly the most terrifying thing I could think of.
Asbestosis is the more commonly known name for asbestos-related disease and yet, as it is not a terminal cancer like mesothelioma, it doesn’t get the same focus. We would like to introduce you to Geoff, a valued member of our support community.
A few years ago, I found myself inexplicably short of breath. I couldn’t walk more than 100 metres without struggling for breath and I had no energy or strength.
Although now retired, my work life had included a five-year apprenticeship at the Midland Railway Workshops back in the 50’s. The locomotives that we worked on had asbestos lagging (refer image). Having had friends succumb to asbestos-related disease through similar exposure, I had been having X-rays and annual checks with for the past 8 years or so. Although these had revealed spots on my lungs, the spots were not moving or growing so I had no cause for concern. I got on with life as through it were a non-event. At that time, I knew very little about asbestos disease not realising that there were two main types one more serious than the other. *(refer note below)
In 2015 I went back for a check-up and was told the spots in mu lungs were moving. This led to a diagnosis of asbestosis. My immediate reaction was sheer bloody terror and to think the worst. I wasn’t comprehending information as, I suppose like many others in similar situations, the thought of not getting enough breath was possibly the most terrifying thing I could think of. At the time, I belonged to a self-help group that had not only helped me through a past crisis but was a major influence on how I live my life. But I felt I needed connection with people that might know more about my current situation and who could help me get clarity. This search led me to the Reflections Through Reality support group. Their friendship and concern has been fantastic and, although my condition is not nearly as serious as others in the group, I find their courage, optimism and positive outlook an inspiration. Some of the things I have gained through this group is gratitude, friendship and admiration for those who are vastly more effected than me. Without the group’s support I imagine I would feel confused and alone. I am truly thankfully I contacted them.
By Geoff Becker
* 1. Asbestosis, inflammation and scarring of the lungs 2. Mesothelioma, a terminal cancer – both resulting from asbestos exposure.
Miracle man is racing time – The Weekend West October 2016
Barry Knowles is in a race against time, hoping researchers can unlock the secret behind his amazing battle against mesothelioma.
The 72-year-old has been dubbed a miracle man for the past six years, incredibly surviving the deadly asbestos disease without medical intervention.
Researchers have been trying to work out how his immune system has kept the disease at bay, in the hope they can replicate its effect in a vaccine that stimulates an attack on the cancer… Read full article
