Navigating a diagnosis of mesothelioma can be a complex mix of juggling appointments, symptom control, side effects, supporting mental health and wellness strategies, legal issues and end -of-life planning.
Doing all of this whilst trying to adjust to an ever changing 'new normal' is rather like learning to swim in a washing machine.
No one has to face this alone. Our nurse-led team is here to walk alongside individuals and families as they come to terms with the diagnosis. We offer a specialist mesothelioma support service developed by those with lived experience of the disease.
Our specialist mesothelioma support team can provide the patient and caregiver personalised support to help navigate the physical, mental and emotional aspects of this journey. We can also help with understanding the services available, decoding the medical jargon, and advocating for the patient.
We can act as a central point of contact bridging the gap between acute and community services. If we don't know the answer, we will help find it.
We offer a range of services, including one-to-one support, in-person peer group sessions, phone assistance, connection to other services, and more.
He was a Doctor, me a nurse, yet we still fell through the gaps. If we struggled, what about the people without our advantage?
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